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Ariana's
Cure
They
say a journey of a thousand miles begins with but a single step. When
Ariana Kallas was recently diagnosed with Morquio Syndrome—a
progressive childhood disorder causing severe skeletal disease and bone
deformity—her single step became a lifetime challenge. The
devastation of Morquio Syndrome is that it not only debilitates and
greatly shortens one’s life, but that it dares to strike the
most precious gift of all—our children. Yet, when gazing upon
Ariana’s angelic face, when looking into her beautiful bright
eyes and seeing that captivating smile, one knows a miracle must be
just around the corner. The primary researcher in this field, Dr.
Shunji Tomatsu, Associate
Professor at the St. Louis University School of Medicine,
Pediatric Research Institute, in St. Louis, Missouri, has been
working on Morquio Type A research for over seventeen years. Recently,
he has managed to isolate and create the enzyme that will completely
arrest the progression of this horrific disease. Dr. Tomatsu believes
he is very close to providing the necessary treatment that will also
eliminate the symptoms of this disease. The next stage involves
clinical trials for his enzyme replacement therapy, and all this, of
course, requires funding. Toward this end, the Cathedral and the Kallas
family are hosting the June 2 benefit, entitled “ A Night of
Magic and Miracles,” in an effort to support Morquio
research. Additionally, online donations are being accepted for
supporting Dr.
Tomatsu's Morquio
research. Your financial support would be a very special show of
support, not
only for little Ariana, but for all the children who have been
diagnosed with Morquio Syndrome. We must share with you that the
response has given us encouragement, and we thank you. Once again,
thank you for your
support, and may God bless you.
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